October 2023

HS Uncovered global patient survey results

Until now the real-life impact of hidradenitis suppurativa (HS) has been hidden for too long. New initial data presented at the 2023 Symposium on Hidradenitis Suppurativa Advances and European Academy of Dermatology and Venereology Congress reveals what it’s really like to live with HS, from physical pain to emotional distress.

A global survey

The HS Uncovered global patient survey is a research collaboration in partnership with patient organizations from across Europe and the United States, in which hundreds of people living with HS shared their lived experience of the condition and the impact it has on all aspects of their lives:

•            Even among those most confident in managing their health, nearly 75% said HS has a very large impact on quality of life.

•            Over 60% said they experience skin pain.

•            Nearly 30% reported abnormal levels of depression.

•            Over 50% reported experiencing work productivity loss.

By revealing more about what it means to live with HS, we can help others better understand the condition, reduce stigma and support more people to get the care they need.

Speak to a consultant dermatologist

If you are living with HS, speak openly with your dermatologist about how the condition impacts all aspects of your life to help them provide you with the best care.

Watch this space for more hidradenitis suppurativa insights

This is a first look at the data from the survey and we expect more results to be revealed over the coming months to help us gain a greater understanding of the experiences of people with HS.

By joining forces, we can uncover the realities of living with HS!

For more information on HS, please visit this page.

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